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Seeing beyond the crooked finger

Nov
22

In a previous post, I wrote about my mother dealing with Multiple System Atrophy, a degenerative condition that ultimately took her life late last month.

A degenerative condition, whether its MSA, cancer or any other terminal disease, is a heartbreaking condition to live with, whether its from the perspective of a caregiver, or the patient.

Without the support of friends, family and caregivers, a patient’s journey will be made that much tougher to withstand. I’d like to think that my mother’s condition and regression through her illness was made slightly easier to bear, surrounded by her beloved siblings, children and grandchildren.

I myself am living with Rheumatoid Arthritis. Its a chronic disease that at present has no cure, but is manageable with medication. I talk freely about it with friends who ask, especially when they see my slightly deformed index finger, like so.

 

finger

Living with HIV

This is not the case for those with HIV. Many around us have our own moral judgements, societal prejudices and the weirdest paranoia that HIV is highly communicable. People with HIV have long been portrayed as an irresponsible bunch, deserving of it due to their lifestyles. Does a person with cancer or diabetes deserve it because he or she didn’t take optimum care of their health?

Imagine that you’re HIV positive, and having to keep your condition, fears, concerns and insecurities deeply to yourself. It is arduous enough a journey to live and fight through any terminal disease, let’s not make it any more difficult.

I recently came across this video, in which Avin Tan, a young Singaporean came out public with his HIV status. He’s the 2nd Singaporean to boldly step forward to give a face to HIV since Paddy Chew in 1998.

I applaud his courage in coming out and sharing his story, fears and hopes.

I hope there will be more like him, and I hope that we can accept him as a fellow Singaporean in need of support, and show him that we can look beyond the disease and see him for the friend, brother, son and person that he is.

Below is a video of him speaking at the 8th Singapore AIDS Conference this year. Let’s help get discrimination of HIV, and ultimately this and many other diseases to zero.

With Education, Empathy and by being an Example.

World Aids Day 2012

Musings Comments Off on Seeing beyond the crooked finger

The 10:10 conspiracy

Nov
20

What do these timepieces have in common?

Harry Winston

Panerai

Patek Philippe

OK, other than the fact that i’ll never be able to afford any of them!

Did you notice, that they are all set to roughly 10:10?

Do you know why?

Don’t worry, its not a global conspiracy or a secret nod to some secret alien invasion scheduled to drop at 10:10. Its more of an aesthetic reason that watches in advertisements are set this way.

The brandnames are typically located just under the 12O’clock mark, so a 10:10 nicely frames the brand, and also provides a sort of smiley, or a tick, when you look at it. (a little not too subtle psychology at play there!)

10:10 also means that any sub-dials or dates (like in the Panerai above) would also not be blocked, and you can clearly see most of the features of the watch.

So there.

Musings Comments Off on The 10:10 conspiracy

Living with Multiple System Atrophy

Nov
08

Multiple System Atrophy is a neurological degenerative disorder. As cells degenerate in specific areas of the brain, it starts affecting a patient’s balance, movement, bladder movement, and control of other muscular functions. The causes of MSA is unknown, and there is no known cure as of today.

MSA is a pretty rare disease, with a prevalence of 4.6 cases per 100,000 people.

Unfortunately, my mother was one of the 4.6.

Diagnosing the disease is a challenge, because there are no tests that can definitively confirm it. In the early stages, all we knew was that my mother’s brain seemed to have started shrinking. She’d suffered a few falls, and we thought it was a stroke that started meddling with her sense of balance.

It was only around 2006 that we had a more conclusive diagnosis.

At first, it was more about taking precautions when walking, and trying to reduce the amount of potentially hazardous activity such as walking tight flights of steps, and placing non-slip mats in the bath. However, it got progressively worse.

By the end of 2008, she was on a wheelchair, with assisted movements to and from the bathroom / bedroom. Her throat muscles were also affected such that she had difficulty pronouncing words, and some difficulty swallowing food. Towards 2011, she’d lost her voice, and all communication had to be done via her pointing out individual alphabets to spell out words on an alphabet chart. Even that fell apart toward her last year of struggle with MSA, as her arm muscles lost all control and strength.

She could no longer feed herself, and could only take in a soft diet. On days she was tired, she couldn’t even summon the strength to open her eyelids.

All this time though, she was extremely lucid, and her mind was still very active, remembering her dear little sister’s birthday, and making sure we were well attended to each time we visited.

MSA took away her life little by little. But she was adamant in never giving up, and never stopped fighting. She never made it easy for MSA.

She succumbed to MSA 30th October 2012. Taken, but not forgotten.

I love you Mum. I know you’re at a better place now.

Instagram rolls out web profiles

Nov
06

Instagram Web Profiles

 

Instagram Web Profiles

 

You can now view instagram photos and profiles on the web.

instagram.com/vinyarb

Read more about web instagram profiles.

Digital Comments Off on Instagram rolls out web profiles